The Patient Voices digital stories
The Patient Voices digital stories use video, audio, still images and music to convey patients’, carers’, practitioners’ and managers’ own stories in a unique way. They are intended to touch the hearts of managers, clinicians and others striving to improve the quality of health and social care, and our workshops being are increasingly used to engage with, and evidence outputs from, the Patient and Public Involvement (PPI) and patient engagement agendas, together with being used to provide qualitative evidence of the patient experience.
Distribution of these stories is funded solely by Pilgrim Projects as a social enterprise. Please let us know how and when you use the stories, so that we can use your experiences to persuade sponsors to support the development of more stories for everyone to use.
Most stories are gathered during small-group workshop sessions with storytellers, who may be patients, carers, managers and/or healthcare professionals. These workshops typically last between two and four days, with pacing and level of technical content adjusted to suit each group of storytellers. The Patient Voices workshops are run using a methodology developed and enhanced by Pip Hardy and Tony Sumner over several years for use in health and social care and educational settings. The aim of a workshop is to facilitate storytellers in a journey through a process which will result in them producing a Patient Voices digital story which is ‘Effective, Affective and Reflective’ (Sumner, 2008).
- Complex pain, complex teams
- Terrific Teens
- Compassion in EoLC
- DNA of Care
- Dementia Insights
- Living with Dementia
- Power of Story
- Positively Different
- New Lives
- Saving Brains
- Physician, know thyself
- Healthy teams
- Building Healthy Rural Communities
- It’s not the cough…
- Talk, tell, transform
- Coming together
- Working together
- Learning together
- Easy breathing
- Speaking Up
- Dignity and respect
- Getting involved in research
- Working smarter
- Why teach English?
- After the fires
- Dangling conversations
- Sheffield Carers’ Voices 2
- NHS Lothian telehealth stories
- In the lead
- Stories from the National Patient Safety Agency
- Telehealth stories
- Stories of recovery from La Trobe University
- MND stories
- NHS Leeds PPI stories
- Sheffield Carers’ Voices
- End of Life Care
- Stories from the University of Liverpool
- Stories from the Isle of Wight Stroke Club
- Nottingham interprofessional stories
- The shock of reality
- Stories from the University of Huddersfield
- Communities of health
- Stories from the NHS Institute for Innovation and Improvement
- Stories from junior doctors in training
- Stories from the Saskatoon Health Region
- Arthur & Co.: Stories about living with Arthritis
- Society of the Holy Child Jesus
- Healing journeys
- Work in Progress
- Caring for vulnerable babies: the reorganisation of neonatal services in England
- Interpreting Tales
- Having a stroke: being a parent
- Stories from Connecting for Health
- Stories from the RCN quality improvement programme
- Carers’ Resource, Harrogate, Craven and Airedale
- Stories from the RCN
- Reconnecting with life: stories of life after stroke
- Stories from Pilgrim Projects
- Stories from the Working in Partnership Programme (WiPP)
- Stories from NHS Tayside
- Stories from NEYNL
- Stories from the Heart Improvement Programme
- Charles Bruce’s stories
- Grace and Joe Desa’s stories
- Alison Ryan’s stories
- David Clark’s stories
- Emma Allen’s stories
- Monica Clarke’s stories
- Ian Kramer’s stories
Using the stories
The stories are accessible from the links at the left of this page. Contact us if you would like to use stories in presentations or other projects. If you would like to be notified of developments to the programme or website, or when we release new stories, please join the Patient Voices discussion group using the link on the ‘Contact us‘ page.
We would ask all users of the stories to be mindful of the license conditions for their use, particularly that they may not be modified. It is important that they remain as they are released by us, in order to retain the integrity of the story shared by the storyteller with us, to keep in place any acknowlegements that may be necessary to comply with the conditions we agree to when we licence music or images for use in a story, and to maintain the visibility of the Patient Voices Programme and Pilgrim Projects so that viewers of stories understand their provenance and where they may find out more. So, for example, you cannot put the stories on YouTube, because of their conditions of service.
Please let us know how and when you use the stories, so that we can use your experiences to persuade sponsors to support the development of more stories for everyone to use. Please join the discussion group so that we can let you know when new stories, workshops or publications are available.
The patients, carers and professionals who contributed their stories to the Patient Voices programme have consented to their use as an educational and learning resource as part of the international drive to improve the quality and responsiveness of services for patients and carers. Any other use or modification or editing of the stories without prior written agreement is not acceptable.
In order to make this possible, the Patient Voices digital stories on this website are licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 2.5 License.
Linking to the stories
If you would like to link to the stories from your website, that would be fine.
To link to one story in a group of stories, please provide a link to the page on which the stories sit on our website, with an instruction along the lines of:
“View the digital stories from Pilgrim Projects at: www.patientvoices.org.uk/pilgrim.htm”.
To link to a particular story, please provide a link to the page on which the story sits on our website, with an instruction along the lines of:
“View the digital story entitled ‘Surviving’ on the following web page: www.patientvoices.org.uk/flv/0168pv384.htm”.
This is for several reasons:
- We have no funding for the hosting or developing the website, and so it’s all done at our cost and in our spare time.
- The pages are currently all static.
- If a story is ever updated (as we had to do when our postcode was changed by the Royal Mail for example…) then the file name changes to identify it as different. So, linking direct to movie files may break.
- We would also like to encourage users to see the site, rather than just one or two stories, so linking to the page a story is on allows viewer to see what we do, and what else is available, so that they can explore and learn independently, as well as in a directed manner.
Please let us know which pages you are linking to, then we can make a note and try our best not to move or break them, but we can make no guarantees that a page will remain present.