Ian's stories cover topics including concordance with treatment, working as a team, and developing systems that benefit patients.
Ian Kramer died on the 28th of May 2006 at St Nicholas' Hospice in Bury St Edmunds. Ian was passionate about making things better for patients and gave generously of his time and stories. He was an enthusiastic supporter of the Patient Voices programme from its inception, and we are priviledged to have known and worked with him.
If you have been moved by Ian's stories, or have found his contribution to your educational or quality improvement programmes useful, please consider making a donation to St Nicholas' Hospice, where Ian spent a lot of time in the last months of his life. He could never say enough good things about the care they provided. To give, please follow the 'fundraising' link on the St Nicholas' Hospice website (http://www.stnicholashospice.org.uk/).
As a person with HIV and a bi-polar disorder, Ian Kramer has plenty of experience not only of the NHS but also of healthcare systems in other countries; he is sure they could learn from each other.
Ian has his blood taken regularly by the same nurse who never gloves up UNTIL one day a senior nurse asks to observe.
Ian had to take one day a month off work in order to collect his various prescriptions from different places. Although before a dedicated pharmacy was eventually installed. He pleads with Trust boards to review systems to ensure that they meet patients’ needs.
Ian faces a daily cocktail of drugs that often make him nauseous. Together with his consultant and pharmacist, they work out a regime that is more acceptable to Ian and thus encourages concordance with treatment.
©2016 Pilgrim Projects Ltd. Updated 31/10/2016.
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