What's new?

The Patient Voices programme is continually growing. This page details changes to the website so you can keep up to date with new stories and key developments. General news about what's happening in the programme is in the newsletter, which you can read by clicking on the links at the left.

Don't miss out – if you would like to be notified of developments to the programme, changes to the website, or the release of new stories, rather than having to come back to the website to check to see if new stories have been released, please follow us on Twitter or Facebook.

Access to the Patient Voices stories is funded solely by Pilgrim Projects as a social enterprise. Please let us know how and when you use the stories, so that we can use your experiences to persuade sponsors to support the development of more stories for everyone to use.

23rd October 2013

Another new story from Manchester's diverse communities is released at: http://www.patientvoices.org.uk/flv/0721pv384.htm

15th October 2013

Six new stories from members of Manchester's diverse communities are released at: http://www.patientvoices.org.uk/dandr.htm

10th October 2013

Pip Hardy and Tony Sumner's October 8th 2013 presentation at the London School of Hygiene and Tropical Medicine is now available at: www.patientvoices.org.uk/present.htm

6th September 2013

Another iPad story from the 'Building healthy rural communities' series, 'The wanderer' is released at: http://www.patientvoices.org.uk/flv/0635pv384.htm

August 2013

A new series of stories exploring the stories that underpin the experiences of rural communities is released at http://www.patientvoices.org.uk/bhrc.htm These stories were created in iPad based workshops in rural Australia.

July 2013

Another story 'Listen carefully' in the series 'It's not the cough' is released at http://www.patientvoices.org.uk/pcgr.htm

June 2013

Another story 'Asking the right questions' in the series 'It's not the cough' is released at http://www.patientvoices.org.uk/pcgr.htm

May 2013

The first three stories in a new series 'It's not the cough' about the experience of living with persistent cough and/or gastric reflux are released at http://www.patientvoices.org.uk/pcgr.htm

A new series of 14 stories told by young people about their experiences of liver disease and transplants 'Talk, Tell, Transform' is released at: http://www.patientvoices.org.uk/ttt.htm

Another story 'The patient who didn't die' from the workshop 'Getting involved in research' is released at: http://www.patientvoices.org.uk/ppires.htm

Added a feed of Twitter posts about digital stories and digital storytelling to the Resources page

Added our presentations from the Create, Act, Change 5th International Digital Storytelling Conference at Heceteppe University, Ankara, Turkey to the presentations page.

April 2013

Added Pip Hardy's 30th April presentation at the 2013 American Educational Research Association conference in San Francisco, USA to the presentations page.

Added Pip Hardy's 25th April webinar presentation to Alberta Health Services, Canada to the presentations page.

March 2013

Two new stories in the Coming together series are released. Patients and Clinical Psychologists sharing tacit knowledge and invaluable experience to drive improvement.

'Just another day', another story in the Working together series is released.

Three new stories in the Coming together series are released. Security guards to administrators, coming together, sharing stories to help drive improvement.

Five stories in the Coming together series are released. The stories in the Coming together series were created at Barts' Health, London, in January and February 2013 at Patient Voices workshops that formed part of the NHS Patient Feedback Challenge Both Sides Now project. Pilgrim Projects/Patient Voices is a Specialist Collaborator on the project, which is led by NHS North East London and the City on behalf of the NHS Institute for Innovation and Improvement. The NHS Patient Feedback Challenge is intended to promote existing best practice in patient engagement and feedback. As part of the project, pairs of Patient Voices workshops (for patients and staff) are being held at each of three Spread Partner sites, one of which is Barts Health, London. More information on the NHS Patient Feedback Challenge can be found here.

Eight stories in the Working together series are released. The stories in the Working together series were created at Manchester Mental Health and Social Care Trust in January 2013 at Patient Voices workshops that formed part of the NHS Patient Feedback Challenge Both Sides Now project. Pilgrim Projects/Patient Voices is a Specialist Collaborator on the project, which is led by NHS North East London and the City on behalf of the NHS Institute for Innovation and Improvement. The NHS Patient Feedback Challenge is intended to promote existing best practice in patient engagement and feedback. As part of the project, pairs of Patient Voices workshops (for patients and staff) are being held at each of three Spread Partner sites, one of which is Manchester Mental Health and Social Care Trust. More information on the NHS Patient Feedback Challenge can be found here.

February 2013

Four further stories in the Dignity and respect series are released. The stories in the Dignity and respect series have been created in a series of workshops that began in November 2011. The series of workshops is sponsored by Manchester Mental Health and Social Care Trust, and is intended to explore the experiences of service users. The Patient Voices reflective digital stories created are being shown at Board meetings in order to draw those present back to the stories behind the decisions they take, and are being used in the recruitment process of staff up to and including the level of Chief Executive, thereby bringing service users' experiences into a key area of service provision and development.

Nine stories in the Learning together series are released. The stories in the Learning together series were created in at Princes Alexandra Hospital, Harlow, in November 2012 at Patient Voices workshops that formed part of the NHS Patient Feedback Challenge Both Sides Now project. Pilgrim Projects/Patient Voices is a Specialist Collaborator on the project, which is led by NHS North East London and the City on behalf of the NHS Institute for Innovation and Improvement. The NHS Patient Feedback Challenge is intended to promote existing best practice in patient engagement and feedback. As part of the project, pairs of Patient Voices workshops (for patients and staff) are being held at each of three Spread Partner sites, one of which is Princess Alexandra Hospital, Harlow. More information on the NHS Patient Feedback Challenge can be found here.

December 2012

Added Pip Hardy's video presentation to Alberta Health Services on the 26th November 2012 to the Presentations page.

Our keynote presentation from the Møte med minner (Meeting memories) conference in Oslo on the 10th December 2012 is available on the Presentations page.

A fifth story from those who deliver and receive care for Chronic Obstructive Pulmonary Disease (COPD) is available at http://www.patientvoices.org.uk/flv/0603pv384.htm

The start of a new series of stories from those who deliver and receive care for Chronic Obstructive Pulmonary Disease (COPD) is available at http://www.patientvoices.org.uk/easybreathing.htm

August 2012

To educate or identify tomorrow's great new carers, academics or leaders in healthcare for tomorrow, we must hear the stories of today's: http://www.patientvoices.org.uk/flv/0094pv384.htm

Complaints handling is a delicate and difficult task. Done well, it can greatly affect the resolution of an issue, but done badly it can leave the complainant feeling invisible and with no option but to escalate: http://www.patientvoices.org.uk/flv/0591pv384.htm

For some mental health service users, every day of waiting and hoping for effective, appropriate support is a long, lonely one: http://www.patientvoices.org.uk/flv/0598pv384.htm

When a brutal tragedy strikes a family, how do we know they will get the support they need? http://www.patientvoices.org.uk/flv/0599pv384.htm

Perhaps it only those who have needed support themselves that can really understand the support that others need? http://www.patientvoices.org.uk/flv/0593pv384.htm

To lose a wife and daughter to suicide on the same day is an unthinkable tragedy but, for Chris, what comes next is far worse: http://www.patientvoices.org.uk/flv/0594pv384.htm

Alcohol, homelessness and life on the streets may become a cycle driving and driven by mental health problems - but it can be broken, and the experiences used to help others: http://www.patientvoices.org.uk/flv/0597pv384.htm

The struggle for dignity, respect and appropriate support for those we care for can be exhausting, but it is a labour of love: http://www.patientvoices.org.uk/flv/0596pv384.htm

Mental health service user are often carers themselves - making timely appropriate provision of services even more important. 'Eight days a week' is available at: http://www.patientvoices.org.uk/flv/0595pv384.htm

July 2012

Becoming part of the 'sandwich generation' is often unexpected, and usually a cause for reflection. 'Empty chairs', a new story about how caring roles change is available at: http://www.patientvoices.org.uk/flv/0184pv384.htm

The third story in a series intended to support improved complaints handling is released as part of the 'Speaking Up' project at: http://www.patientvoices.org.uk/speakingup.htm

June 2012

The second story in a series intended to support improved complaints handling is released as part of the 'Speaking Up' project at: http://www.patientvoices.org.uk/speakingup.htm

April 2012

Added an 'Awards' page in response to requests about recognition of the programme.

The first story in a series intended to support improved complaints handling is released as part of the 'Speaking Up' project at: http://www.patientvoices.org.uk/speakingup.htm

February 2012

Five more stories from the workshop 'Dignity and respect' are released at: http://www.patientvoices.org.uk/dandr.htm

The fourth story, 'Why wait?', from the workshop 'Getting involved in research' is released at: http://www.patientvoices.org.uk/flv/0569pv384.htm

The third story, 'Why research?', from the workshop 'Getting involved in research' is released at: http://www.patientvoices.org.uk/flv/0570pv384.htm

In order to build dignity and respect for service users into the training of professionals, we need to know what stories of dignity and respect service users carry with them, in order to inform learning materials developed for new practitioners. The first story, 'My NEADs', from the workshop 'Dignity and respect' is released at: http://www.patientvoices.org.uk/dandr.htm

The second story, 'The elephant in the room', from the workshop 'Getting involved in research' is released at: http://www.patientvoices.org.uk/flv/0572pv384.htm

January 2012

If patients are to be genuinely involved in the coproduction of care, they must also be involved appropriately, effectively and respectfully in the research that determines the direction of future care. The participation of patients in research programmes is essential to the development and testing of new treatments and processes, but what motivates those that want to get involved? The first story 'At the centre' from the workshop 'Getting involved in research' is released at: http://www.patientvoices.org.uk/ppires.htm

Two more stories told by young Allied Health Professionals (AHPs) about their experiences of training and employment from the workshop 'Working smarter' are released at: http://www.patientvoices.org.uk/unahp.htm

Reflective digital stories told by young Allied Health Professionals (AHPs) about their experiences of training and employment are valuable learning resources that can be placed at the centre of programmes for the development of mentors and preceptors. They also provide a rich way of gathering and conveying to further cohorts of trainee AHPs the experiences and experiential learning of their predecessors. The first story 'Learning to work smarter, not harder' from the workshop 'Working smarter' is released at: http://www.patientvoices.org.uk/unahp.htm

Digital storytelling allows the sharing of voices that are waiting patiently to be heard in many field of vocation and enterprise. The first story 'Coming of age...' from the workshop 'Why teach English?' is released at: http://www.patientvoices.org.uk/untesol.htm These stories explore the motivation behind the choice to teach English as a second language as a career.

November 2011

'Footsteps', a brave and powerful story, describing a journey from abuse to recovery, via self-harm and indifferent support services, is released at: http://www.patientvoices.org.uk/flv/0519pv384.htm

October 2011

Our workshop presentation from the 'Educating for PPI' conference at London Southbank University on the 20th October 2011 can be seen at: http://www.patientvoices.org.uk/present.htm

Pip Hardy's presentation at the Second Global Mental Health Summit in Capetown, South Africa, on October 17th 2011 can be seen at: http://www.patientvoices.org.uk/flv/0574pv384.htm

September 2011

'Finger on the pulse', a story of midwifery, vocation and vigilance, is released at: http://www.patientvoices.org.uk/flv/0498pv384.htm

'I went to work… …and delivered sandwiches' and 'The barrel', are the first two released stories from a workshop for professionals who had supported victims of bush fires in Australia: http://www.patientvoices.org.uk/bchs.htm

'Running against genes', a story of how genetic inheritance can affect a young woman's life, is released at: http://www.patientvoices.org.uk/pilgrim.htm

August 2011

Another story 'Never give up hope' in the series of telehealth stories from NHS Lothian is released at: http://www.patientvoices.org.uk/sth.htm

June 2011

The final story, 'The day the singing stopped', from a workshop with carers from different communities in Sheffield is released at: http://www.patientvoices.org.uk/sheffcc2.htm

Another story, 'Bob', in the series of telehealth stories from NHS Lothian is released at: http://www.patientvoices.org.uk/sth.htm

The final story, 'The day the singing stopped', from a workshop with carers from different communities in Sheffield is released at: http://www.patientvoices.org.uk/sheffcc2.htm

May 2011

Eight new stories from a workshop for people with early stage dementia and their carers are released at: http://www.patientvoices.org.uk/dc.htm

A very special, and personal for many reasons, story is released. Steve's eldest daughter, Ellie, died of Mucopolysaccharide disease (MPS). When he is diagnosed with a grade 4 Glyoblastoma, Steve knows that one of the things he wants to do is to leave a message for his younger daughter, Issy, about how important she is to him. You can see this story, and donate to the MPS Society, at: http://www.patientvoices.org.uk/flv/0460pv384.htm

The first four stories, including one in both English and Cantonese, from a workshop with carers from different communities in Sheffield are released at: http://www.patientvoices.org.uk/sheffcc2.htm

April 2011

Another story 'A leap of faith' in the latest series of telehealth stories is released at: http://www.patientvoices.org.uk/sth.htm

Three more stories 'Long distance communications', 'Good health to bad health', and 'Why me?' in the latest series of telehealth stories are released at: http:www.patientvoices.org.uk/sth.htm

Mark Shea's MSc Thesis 'An exploration of personal experiences of taking part in a digital storytelling project' is available at: http://www.patientvoices.org.uk/research.htm

March 2011

'Someone who believed in me' - the second story in a new series around telehealth and its benefits for patients and carers, is released.

'Challenges' - the first story in a new series around telehealth and its benefits for patients and carers, is released.

'The sun also rises' - a story about the coming to terms with the possibility of a diagnosis of dementia, is released.

'Another bag of Syntocin?' - a story of childbirth and labour, practice and assumption, is released.

For all you happening people out there, and those that want to know what's happening, we now have a Twitter address, with a feed on the front page of the website.

February 2011

The first two stories, 'From forest to forest' and 'A defining moment...' in the 'In the lead' series have been released. These stories are about motivation, inspiration and leadership in healthcare settings.

Added 'Patient Voices: Transforming healthcare through digital storytelling' to the presentations page. This is the keynote presentation given by Pip Hardy at the 4th International Conference on Digital Storytelling in Lillehammer, Norway on February 5th 2011.

November 2010

The fifth story in a new series around patient safety 'If something's worth doing...' has been released.

October 2010

The fourth story in a new series around patient safety 'What comes first, the chicken or the egg?' has been released.

The first three stories in a new series around patient safety, 'Prader-Willi, Madonna and a fridge', 'Lost in translation…', and 'Therapeutic observations?', have been released.

The final story 'How can I make a difference' in the series of telehealth stories from the Isle of Bute has been released.

September 2010

Another story, 'The old ogre', in a series around recovery and mental health, created at a workshop for La Trobe University, has been released.

August 2010

A series of stories from those who use, deliver and develop telehealth services has been released.

Another story, 'The magic faraway tree', in a series around recovery and mental health, created at a workshop for La Trobe University, has been released.

July 2010

Eight new stories 'The girl in the garden', 'Butterfly', 'It’s not cool to take drugs', 'Photos', 'Life is but a meta-4-letter word', 'Playing in unfamiliar territory', 'The rules of grief', and 'Healing waters, people and places', in a series around recovery and mental health, created at a workshop for La Trobe University, have been released.

A third presentation, 'Ways of knowing, ways of being', given at the 16th International Reflective Practice conference at the University of Bedford has been uploaded. It can be found on the presentations page.

Two presentations given at the 16th International Reflective Practice conference at the University of Bedford have been uploaded. They can be found on the presentations page.

With effect from the 1st August 2010, Pip Hardy has been designated a Visiting Teaching Fellow in the Faculty of Health, Psychology and Social Care, Department of Nursing at Manchester Metropolitan University.

An article appeared about the Patient Voices programme in 'Summons' magazine. It can be found on the articles page.

June 2010

We've been shortlisted for the 2010 Medical Journalists Association awards, in the 'Health Champion of the Year' category. For more information, see: http://mjaawards.com/

A new story 'A one-way ticket' is released. This story deals with the experiences of a person with MND.

April 2010

Two new stories are released. 'Working as a team?', is a new story around teamwork and development facilated for the RCN. 'A carer's story' is the first in a series of stories from pilgrim Projects illustrating carer's experiences.

Four new stories from Pilgrim Projects, 'Suicide', 'It doesn't happen here', 'Not our concern now' and 'Parents lost to alcohol' are released.

February 2010

Seven new stories from a variety of projects, 'Harry's legacy', 'Don’t worry, we are here to look after you', 'Invisible disabilities', 'Appropriate care', 'Mind maps', 'Life with the RCN' and 'A chocolate watch' are released. Another batch of wordles have been created and added to the relevant story pages. New Patient Voices logo added to website pages.

January 2010

Issue 6 of the Patient Voices newsletter is now available. We have given up on our fax line, as we have received so few faxes this year.

Some major work on the website is coming to fruition (so much for a Christmas break!). The stories (over 250) have been re-rendered and uploaded to the site as flash movies to make them more easily playable from different computer platforms, and now sit on individual pages, to make linking to them easier. Each story page will eventually contain a 'Wordle' providing a quick visual impression of the story content, but these will have to be manually produced as we get time. To see some examples, have a look at Emma Allen's stories.

December 2009

The work of the Patient Voices programme, and the contributions of its storytellers and workshop sponsors has been recognised with shortlisting for the BMJ Group Awards in two categories: Excellence in Healthcare Education and Health Communicator of the Year. We eagerly await the awards ceremony on March 10th!

November 2009

Another story, 'A sunny day in December', in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, is released.

There is now an embedded Google search for the site, accessible from the 'Search' tab at the top of every page.

The latest open workshop schedule, with dates for 2010, is now available from the 'Workshops' page.

October 2009

Ten new stories, 'Father in CAMHS', 'I'll do anything', 'An ordinary life', 'Getting involved', 'My careers officer said...', 'Why I became a blood donor', 'They're my eyes', 'Learning to listen', 'From Red Dwarf to black hole…and back again' and 'Laura' are released.

These stories, told by a group of service users, carers and PPI professionals, reflect the personal and professional experiences and aspirations that lead to participation in the PPI process.

Please note our new phone number, which has finally arrived. It is 01954 202158, and accompanies our new office address:

The Barn

1 Corbett Street

Cottenham

Cambridgeshire CB24 8QX

For the moment, our fax number remains unchanged.

Two new stories from a Pilgrim Projects/Patient Voices digital storytelling workshop, 'Look both ways' and 'Recovery' have been released. Both are stories told by nursing professionals.

September 2009

Another story, 'Where would I be without Shpresa?', around refugee, migrant and immigrant experiences from the 'Communities of Health' project with Newham PCT has been released.

Another story, 'Nurse in charge', in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, is released.

Nine new stories created in a Patient Voices workshop sponsored by Sheffield City Council are released. These stories, told by people who use mental health services and those who care for them, are intended to illuminate the experiences of people affected by a range of serious mental health conditions including psychosis, depression, anxiety and autism, highlighting the needs of those who suffer from such conditions, and of those who care for them.

Another story, 'Breaking bad news: Is there a right way?', in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, is released.

August 2009

Another story, 'Maybe it just isn’t the right job for you?', in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, is released.

The final story, 'Blink once for yes', from the University of Liverpool 'Get Involved 4 the Future' project is released.

Two new stories, 'Looking for my mum' and 'From darkness into light: new worlds' are released.

July 2009

Two new stories, 'Climbing mountains' and 'Amesegenallo' are released.

June 2009

Four new stories, 'My journey with David', 'Soulmate', 'The real Malcolm' and 'A bed for Betty', in a series around experiences of end of life care created to accompany the National Audit Office's End of Life Care Conference held on 17 June 2009 are released.

Another story, 'Alphonsus', from the University of Liverpool Get fit 4 the future series is released.

Three more stories, 'What if the relationship is not enough?', 'Are we there yet?' and 'Who is an expert?', in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, are released.

May 2009

Six new stories around refugee, migrant and immigrant experiences from the 'Communities of Health' project with Newham PCT have been released. These are 'Hope never dies', 'A light at the end of the tunnel', 'A knock on the door', 'How I turned my life around', 'Never give up' and 'A journey that saved my life'.

Four stories, 'Darkness', 'My friend Autopilot', 'One woman's life' and 'You only get one mum', from a Patient Voices worshop run for the Get Involved 4 the Future project are released. Get Involved 4 the Future is being developed by the University of Liverpool School of Health Sciences in partnership with the Forum of Carers and Users of Services and with support from the University of Liverpool Centre for Excellence in Teaching and Learning.

Seven stories from members of the Isle of Wight Stroke Club, 'The longest night', 'Julie', 'Vicious circles', 'Dancing feet', 'No longer forgotten', 'Too much sun', 'The most wonderful husband in the world' and 'The hidden disability', are released.

April 2009

Eleven new stories ('Out of Africa', 'The first ten years are the worst', 'No holding back', 'Inspiration from an unexpected quarter', 'In the face of a child', 'Could you have anything better?', 'From sole to soul', 'The feet on the sofa', 'Something out of the ordinary', 'It is a wonderful life' and 'Angelic music') from members of the Society of the Holy Child Jesus are released, taking the number of stories on the website to over 200.

'True colours', the first story in a series facilitated for the University of Nottingham which allows newly-qualified mental health nurses to reflect upon and share their experiences, is released.

March 2009

Another story from the RCN, 'From little acorns...' is released.

The pages under the 'Resources' tab have been expanded to include a page containing links to workbooks and educational materials developed around some of the Patient Voices digital stories.

Another story from the RCN, 'Lost and found' is released.

Another story from Pilgrim Projects, 'Resilience', is released.

Two new stories 'Demons and despair' and 'She's fine, don't worry' are released.

February 2009

The pages under the 'Resources' tab have been reorganised and expanded to include presentations, papers and articles related to the Patient Voices programme.

January 2009

Another story from the University of Huddersfield, 'The complex pathway to motherhood' is released.

Another story from Pilgrim Projects, 'A patient meditation' is released.

The first in a series of stories from the University of Hudderfield 'See you later' is released.

To start the New Year is style, three new stories are released. 'In the humble and hidden life' is another story from members of the Society of the Holy Child Jesus, 'The boy whose best friend was a Hoover' is a new story from Pilgrim projects, and 'My mum's smile' is the fourth in the series of stories from Newham PCT's 'Communities of health' programme.

December 2008

Two stories from Pilgrim Projects, 'A week in the life of...' and 'The forgotten memories' are released.

The fourth issue of the Patient Voices newsletter is available to download, and the list of workshop dates for 2009 has been updated.

October 2008

'Shpresa: the medicine that saved my life', 'In sickness and in health' and 'An inspiration to heaven and earth', the first three stories in the series 'Communities of health' from Newham PCT, are released.

'Crossing the road', 'Standing on my own two feet' and 'Inside out', three more stories in a series of stories around issues of faith, calling and vocation, told by members of the Society of the Holy Child Jesus, are released.

Two stories from Pilgrim Projects around depression and separation, 'Transplant' and 'Feeling suicidal' have been released.

September 2008

Going into hospital presents particular challenges to people with diabetes. Five new stories ('Taking control', 'Extremes', 'A hospital is no place for a diabetic', 'Double trouble' and 'Hard-boiled eggs') are released. These stories were developed at a workshop sponsored by the NHS Institute for Innovation and Improvement Diabetes in-patients, in order that the ‘Think Glucose' toolkit would be able to carry within it the experiences and stories of some of those patients.

August 2008

As part of ongoing research into the use of the Patient Voices digital storytelling methodology as a reflective tool in medical education, Pilgrim Projects and the University of Leicester Medical School offered a digital storytelling workshop to final year medical students as a student selected component (SSC) of their training. Seven new stories, told by junior doctors, were the result.

July 2008

A series of ten new stories, 'The story of an eagle', 'A second chance', 'Our journey in life', 'Don't knock on my door', 'I remember them', 'Healing', 'Mooshum', 'My family', 'Grandpa's inspiration' and 'Why me?', are released. These stories were created in a CDS workshop (co-facilitated by Pip Hardy) in Saskatoon, Saskatchewan, as part of the evaluation of the Live Well™ with Chronic Conditions Program for Aboriginal people.

Five stories, 'Max and me', 'Magic light switches', 'Eric's first fifty years', 'I'm back!' and 'My dear friend Arthur', in the series 'Arthur & Co.: stories about living with Arthritis', are released.

June 2008

'Christmas' and 'Be yourself', the first two in a series of stories around issues of faith, calling and vocation, told by members of the Society of the Holy Child Jesus, are released.

May 2008

Two more stories 'Once upon a time...' and 'A long and troubled road' in the 'Healing journeys' series are released.

The first five stories, 'My little lost boy', 'Jane and Peter's journey', 'Peaks and troughs', 'Fragile: deliver with care' and 'Something from nothing' in the 'Healing journeys' series are released. These stories were created by service users in a Patient Voices workshop that took place in March 2008 at the Sheffield Hallam University Occupational Therapy department.

April 2008

The third edition of the Patient Voices newsletter is now available from the links at left.

Two new stories are released. 'The other side of the bed', which was created at a Pilgrim Projects digital storytelling workshop, and 'Not just a healthcare assistant' from the Royal College of Nursing.

March 2008

'I used to sit in this chair', 'Not just a piano tuner', 'Tip off' and 'Filling the void', 'A fish out of water', 'I've got it all' and 'Worth more than a bouquet of flowers', in the 'Work in Progress' series are released. These stories have been told by disabled people in order to share the experiences, challenges and successes of their careers.

The order in which groups of stories are listed down the left hand side of pages has been reversed, so that the newest groups of stories are at the top of the page.

February 2008

Another story from Pilgrim Projects, 'Cycling down memory lane' is released.

January 2008

An updated schedule of digital storytelling workshops is now available on the Workshops page

A story from Pilgrim Projects 'Taking my life back', in which a patient describes her realisation that she would have to manage her own care for the Fibromyalgia that was ruining her life, is released.

To start 2008, more stories from the 'Interpreting Tales' series, 'The unlikely interpreter', 'What would you do?' and 'The cost of interpreting' are released.

December 2007

To round off 2007, another story from the RCN Quality Improvement Programme dealing with issues around continence care and dementia, 'Losing Mary', is released.

Two more stories ('So many words...' and 'Too much of a faff') in the 'Interpreting Tales' series are released.

We have released a series of nine stories ('Full of beans', 'Thank you very much', 'I am very lucky', 'Iman', 'The third time...', 'Two for the price of one', 'A fighter from the start', 'When the clock stopped' and 'Nothing but the baby in my tummy') around mothers' experiences of neonatal care for premature babies.

The second issue of the Patient Voices newsletter is released – just in time for Christmas. Click on the link at the left to read it.

A new story, 'Surviving', created by a participant in a Pilgrim Projects story-telling workshop is released.

November 2007

An updated schedule of digital storytelling workshops is now available on the Workshops page

The first seven stories ('A change of heart', 'The world through another person’s eyes', 'Please help us...' 'The naked truth', 'Yasmin', 'The world is full of remedies' and 'Lost in translation') in a new series are released to the website. These stories are part of the 'Interpreting Tales' series, which is the result of a collaboration between Cintra, INTRAN, HITS and TIP, and has been made possible with funding from EEDA. Told by interpreters, service users and service providers, the stories are intended to highlight the need for professionally qualified interpreters where English is not the first language in order to improve access to all public sector services, and especially to reduce health inequalities and improve health outcomes.

Added a link from the 'The stories' page to a note on how to use the stories from within a PowerPoint presentation.

A story created in a Pilgrim Projects story-telling workshop earlier this year 'Knitting' is released. For a relative or a carer the language of healthcare can be harsh, frightening, guttural and unfeeling - even when interpersonal relationships are strong and care is effective. This story uses a written style that attempts to highlight that contrast.

October 2007

Two new stories created by participants in a Pilgrim Projects story-telling workshop 'CPR' and 'Only connect: a life in stories' are released.

August 2007

Two new stories from Pilgrim Projects and the RCN Quality Improvement Programme, 'Getting it right' and 'Out of reach' are released.

Another story from the RCN Quality Improvement Programme dealing with issues around continence care and Parkinson's, 'Christmas with Mum' is released.

Two new stories from the RCN Quality Improvement Programme dealing with issues around continence care and Parkinson's, 'Simple solutions' and 'I wouldn't have started from here' are released.

The first issue of the Patient Voices newletter is available to download.

Another story from Pilgrim Projects, 'Something for free' is released.

Inverted the table of stories on the 'Find a story' page, so that the newest stories are at the top.

Added details of the current Patient Voices workshop programme to the Workshops page. Come along and learn more!

July 2007

Released six new stories 'The best Dad in the world', 'See me now', 'There's more to life…', 'From pillar to post', 'A much stronger family' and 'If I had to go through it all again…', all from ‘Having a stroke: being a parent’, the result of a collaboration between Connect, Guy’s and St Thomas’ Charity, and the Stroke Modernisation Initiative.

Pip Hardy's Masters thesis 'An investigation into the application of the Patient Voices digital stories in healthcare education: quality of learning, policy impact and practice-based value' is added, along with other papers and publications, to a new 'Research' page.

All website pages get a quick tidy-up to improve behaviour with Safari and Firefox browsers.

June 2007

Another story from the RCN Quality Improvement Programme, 'Nil by mouth' is released. Another story from the Heart Improvement Programme, 'A moving story' is released.

May 2007

Added a page describing the Patient Voices workshop programme.

April 2007

A third story from Connecting for Health, 'Leanna' is released.

March 2007

Creating an Interprofessional Workforce (CIPW), a 3-year programme funded by the Department of Health and hosted by NHS Southwest, has launched the John Horder Award for Innovation as a way of recognising innovation in interprofessional learning and development. This year, the Patient Voices programme was runner-up, and Pip Hardy was delighted to accept the award at the Higher Education Academy Festival of Learning.

Our postcode was changed, so began a rolling programme of updating and re-rendering stories.

Three more stories from the RCN quality improvement programme, 'Where do you draw the line?', 'Getting to the bottom of things' and 'An open-door policy' were released.

Another story from the Heart Improvement Programme, 'Working at the hub' was released.

Another story from the Carers' Resource, 'A plea for dignity' was released.

A second story from Connecting for Health, 'Getting in ... and getting out' is released.

January 2007

We started 2007 by releasing 'Family matters', 'Just John's wife', 'Don't give up', 'Learning to care is part of the job', 'My Michael', 'Just Jack', 'Why am I not the expert?', 'Please, just listen'and 'A permanent holiday?' – nine stories from the Carers' Resource, Harrogate, Craven and Airedale.

Two more stories from Pilgrim Projects, 'The Dormouse and the Doctor' and 'A tribute to St Nicholas' Hospice' were released.

A story from Connecting for Health, 'The nurse's tale' was released.

The first story from the RCN quality improvement programme, 'She always liked to feel useful' was released.

Another story from the RCN PDF programme, 'Imagine a world' was released.

As the number of stories available was now approaching 70, we added the 'Find a story' link to the title bar of each page. This currently goes to one page listing all the stories, together with their descriptions and some keywords. Each story is linked back to the page from which it can be played. Eventually this will become a search page.

December 2006

Uploaded a new version of 'Getting the balance right' to improve audio quality. Rendering the compact versions for the website can sometimes affect audio quality – please let us know of any stories that cause problems.

November 2006

Added information on how to play the movies on a Macintosh.

Added a feedback questionnaire to the contact page. Feedback on all aspects of the programme is always eagerly awaited.

October 2006

In order to help share experience and practice of using and making Patient Voices digital stories, we have set up an online discussion group. We would like to invite you to join the Patient Voices community of practice, where you can check in from time to tell us how you are using the Patient Voices digital stories, or what we could do improve the stories or the website. And of course, we are always happy to hear from new storytellers! To join the group, just email us your details from the contact page on this website.

'A world of difference', the first in a set of stories around issues of professional development from the Royal College of Nursing PDF programme is released.

'Pushing water uphill', 'Working together towards self-care', 'A painful story' and 'What I’ve learned from my dad', four more stories from the Working in Partnership Programme relating to self-care are released.

Released 'Reconnecting with life: stories of life after stroke'. This set of stories is about the experience of living with stroke and aphasia and how people move forward with life after stroke.

Another story from the Heart Improvement Programme, 'Getting the balance right' is released.

September 2006

A story from Pilgrim Projects, 'Bicycle clips!' is released.

Another story from the Heart Improvement Programme, 'A tap on the shoulder' is released.

Added 'For the love of Lee', the first story from the Working in Partnership Programme.

Another story from the Heart Improvement Programme, 'A common language?' is released.

Two stories from the Department of Risk Management, NHS Tayside are added – 'Jimmy's story' and 'Sixty seconds to go...'

August 2006

Added the paper Patient Voices: an investigation into improving the quality of healthcare using digital patient stories.

Added the presentation Voices from the heart of healthcare, which provides an introduction to the programme.

 

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