Not alone

Caroline knew nothing about Sickle Cell Anaemia when her new baby daughter was diagnosed with the condition. When she had her first crisis, aged two, she learned too much about pain and about the helplessness and frustration of being able to do nothing to alleviate Precious' suffering. Caroline's ceaseless research, together with her experience of caring for her daughter have given her the knowledge - and the confidence to ask for the support they need.
This Patient Voices digital story was created in a workshop funded by Imperial College Healthcare Charity and North West London CLAHRC.