A Precious life.

Ade's ponders how to answer his daughter's plea for a new arm and leg to replace her existing painful ones; how to respond when she is in hospital, along with her brother, in excruciating pain. Ade's daughter has Sickle Cell Anaemia. In search of a better life outside London, the family faces uncertain care and Ade has had to fight for knowledge, research, empathy and care, but he knows it is worth it for the life of his precious daughter and for all those affected by Sickle Cell disease.
This Patient Voices digital story was created in a workshop funded by Imperial College Healthcare Charity and North West London CLAHRC.